CMT Awareness Month

As most of you know Caleb has Charcot- Marie-Tooth Disease. CMT is the most common hereditary peripheral neuropathy, impacting roughly 2.8 million people worldwide.

thumbnail_image001CMT is a disease of the peripheral nerves in the body. As the disease progresses the nerves that control the muscles die. This causes nerve pain, along with a loss of sensation and function in the hands, arms, feet, and legs. CMT is incurable and can be devastatingly disabling as it progresses. There are many types of CMT and the only way to know which type you have is through genetic testing. Caleb has type 1A, the most common type.


September is CMT Awareness Month and we have so many fun things going on. We are wrapping trees (and everything else we can) in blue ribbon to spread awareness. We have wonderful awareness posters from the CMTA to spread around town. We are participating in the Michigan Walk 4 CMT in Ann Arbor. We are also having our inaugural meeting of the Grand Rapids, Michigan CMTA Branch on September 20th.


To learn more about CMT please visit

To join us in wrapping a tree for CMT visit

To hear more stories about people impacted by CMT visit



One thought on “CMT Awareness Month

  1. Pingback: Transitions As A Special Needs Parent – Urban Rooted Mama

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